Ten years of the Hunter Outcome Survey (HOS): insights, achievements, and lessons learned from a global patient registry

Orphanet J Rare Dis. 2017 May 2;12(1):82. DOI:10.1186/s13023-017-0635-z

Muenzer J, Jones SA, Tylki-Szymańska A, Harmatz P, et al

https://www.ncbi.nlm.nih.gov/pubmed/28464912

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